Recent tweets about Long Covid (2/3/23)

“The bottom line is #LongCovid is why the labor force participation rate has not recovered to pre-pandemic levels, even in a situation with solid wage growth," wrote Torsten Slok, chief economist and partner at Apollo Global Management https://t.co/Rcwa6nRehd
— charlos (@loscharlos) February 3, 2023

“My dream to be behind the counter talking with folks about cheese & tasting with them for the rest of my life has changed,” she says. “I had many months of crying. I have imposter syndrome because I now have no confidence in myself.” #LongCovid https://t.co/vGXvpkZ2Y8
— charlos (@loscharlos) February 1, 2023

“Senator @timkaine introduced a bill that could jump-start #LongCovid recommendations from patients. He told Axios the legislation is likely to pass ‘even in a divided Congress.’” https://t.co/q9obpjrjXA
— charlos (@loscharlos) January 30, 2023

“A study from Houston Methodist found some #LongCovid patients aren't getting enough blood to their heart.. The ability of endothelial cells, which play a key role in dilating arteries.. was diminished by 20% among 101 long covid patients who participated”https://t.co/GGHqRly4mM
— charlos (@loscharlos) August 19, 2022

Two weeks ago, I sent our corrections letter to the @newrepublic about their misinformed and dangerous column on #LongCovid/#ME. Over 200+ experts signed the letter but we still haven’t received a response.

Today it was published in @PublicHerald https://t.co/nDvG9X2Fes
— Miles W. Griffis (@mileswgriffis) January 25, 2023

Tweets on long COVID

“Long Covid has harmed the work force,” says a new report on workers’ compensation claims in New York state. It found that most people who received workers’ comp for long Covid either needed medical treatment or were unable to work for six months or more. https://t.co/Unl82ewJFR
— Pam Belluck (@PamBelluck) January 24, 2023

"While pacing can make a huge difference … it also comes with a cost. Pacing often means cutting back on both work and favorite activities … And it can represent a challenging reversal for people … accustomed to leading busy, active lives." https://t.co/aU9v6KbPOo
— HRH Katriona, Duchess of (@LongCovidDuchy) January 16, 2023

"Research review suggests long COVID may last indefinitely for some people and mimic other ailments"

"They also found that in many cases, the symptoms of long COVID become nearly indistinguishable from several other conditions, such as chronic…https://t.co/4R6ubK7HNp
— Dakota (@Dakota_150) January 16, 2023

Our comprehensive review of #LongCovid has just been publishedhttps://t.co/EgO7gtFvoe
Phenomenal work by @ahandvanish @LisaAMcCorkell @juliamv @NatureRevMicro pic.twitter.com/X78QqFr7WK
— Eric Topol (@EricTopol) January 13, 2023

“The most common symptom of #LongCOVID is fatigue, and that was not on this list. Also missing was PEM, POTS, ME/CFS. These are some of the major presentations I am seeing in my clinic population, so it is a major limitation…” -⁦@MVGutierrezMD⁩ https://t.co/r7vCFLBD0O
— Monica Verduzco-Gutierrez, MD (@MVGutierrezMD) January 12, 2023

“We found that a staggering 90% of people living with #LongCovid initially experienced only mild illness.. These symptoms had an impact on health as severe as the long-term effects of traumatic brain injury.” https://t.co/OTKpYDqFDL
— charlos (@loscharlos) January 5, 2023

Study looking at #LongCovid 2 years after infection:

Despite exercise, respiratory & olfactory rehab, cognition/speech therapy & psychological support, the main symptoms (fatigue, neurocognition, muscle) did not resolve.

Only 9% of patients recovered. 1/https://t.co/hPBbx1dnYm pic.twitter.com/BxeKGOI9AG
— Hannah Davis (@ahandvanish) January 21, 2023

Brain fog and other symptoms of #LongCovid appear to be correlated with delayed clearance of the virus from the upper respiratory tract, via 9 serial PCR assessments out to 42 days in 73 participants https://t.co/dnVqXkztJx pic.twitter.com/uCkFLW7ozU
— Eric Topol (@EricTopol) January 20, 2023

More tweets on long Covid

‘Long covid’ is going to be a long haul, the Editorial Board writes. https://t.co/KJhzkcW6XA
— Washington Post Opinions (@PostOpinions) May 22, 2022

Here's a look at the toll long Covid takes inside the body — and why it can be so debilitating. https://t.co/6xt8oeohE0
— The New York Times (@nytimes) May 19, 2022

Big #LongCovid paper out with a lot of new insights (n=78k)!

-76% of LC patients were not hospitalized (!!)
-82% of female patients non-hospitalized vs 68% males
-36-50 year olds were the highest risk age group
-59.8% of patients female; 46.2% malehttps://t.co/VFrpnLWMtP

1/ pic.twitter.com/ln1n5gpZIb
— Hannah Davis (@ahandvanish) May 18, 2022

Making a list of possible pre-existing risk factors for #LongCovid, particularly the non-hospitalized neurological cluster. Are any obvious conditions missing? (Assume the risk factors for acute COVID are accounted for). pic.twitter.com/c1AfkrHUeM
— Hannah Davis (@ahandvanish) May 18, 2022

Breaking News: More than 75% of long Covid patients in the U.S. were not hospitalized when they were first infected — yet months later, they were experiencing symptoms that were diagnosed as post-Covid conditions, a large study found. https://t.co/olGbuOYMt8
— The New York Times (@nytimes) May 18, 2022

One thing that still happens, even today, is that the kind of pundit who throws around the term “zero COVID,” and responds to any ongoing pandemic concerns with a smug “We have a vaccine,” treats anyone worried about the effects of long COVID with total derision https://t.co/ACRxe3fvRx
— Will Stancil (@whstancil) June 15, 2022

More tweets on long COVID

I don't want long COVID, but the main q I have is 1) what remaining actions can realistically prevent never getting omicron and 2) what is the end point of this approach? Is the expectation COVID disappears? Or long COVID prevention pill around the corner? https://t.co/wh45lNAEjv
— Benjy Sarlin (@BenjySarlin) May 13, 2022

With long COVID still so new and mysterious, Americans suffering from it are running into obstacles presented by health and safety net systems that are difficult to navigate even in the best scenarios. https://t.co/91NdsUHGMz
— Axios (@axios) May 7, 2022

The hydra-headed nature of long COVID, whose symptoms include everything from brain fog to organ damage, is just one of the complexities researchers are only beginning to tease out about the condition.

Here’s what we know about it so far 👉 https://t.co/8DdvxVaa3U pic.twitter.com/b1I69f48TF
— Axios (@axios) May 7, 2022

Long COVID Patients Say Doctors Are Ignoring Their Symptoms https://t.co/FAzsfn4x05
— Seung Min Kim (@seungminkim) April 29, 2022

Nearly two years after testing positive for COVID, Senator @timkaine is still battling the virus.

He is one of up to 23 million Americans living with long COVID symptoms — and now, he is proposing a new law to fund more research into the virus and help patients. pic.twitter.com/xVSqbiN2yy
— CBS Mornings (@CBSMornings) April 28, 2022

New: Nearly one in five teachers, principals, and school district leaders have experienced long COVID, according to a new @educationweek Research Center survey.

I talked to many educators about their persistent, nightmarish symptoms. Here's what they say: https://t.co/ikgF7KOM7n
— Mark Lieberman (@MarkALieberman) April 27, 2022

Those who get infected are at higher risk of brain shrinkage, blood clots, heart disease, strokes and diabetes.

A separate post-viral syndrome called long Covid can cause a range of debilitating symptoms from cognitive dysfunction to extreme fatigue https://t.co/Wvbpd0iHpR
— Jonathan Lemire (@JonLemire) April 23, 2022

Already today many are more worried about long-COVID than they are about simply getting a bout of COVID.

For good reason. If you’re vaccinated & boosted, surviving COVID is less of a concern. What comes next is. 2/
— Andy Slavitt 💙💛 (@ASlavitt) April 17, 2022

Priority 5: Long COVID treatments. Very promising news on long-COVID treatments. With best practices from @PutrinoLab, that he lays out here, 15-20% can fully recover & the vast majority can see 70% improvement. 8/https://t.co/bA3oeXjDgO
— Andy Slavitt 💙💛 (@ASlavitt) April 15, 2022

We were warned.

“Initially, public health officials believed that only a small minority of people would suffer from long COVID-19. But some studies now indicate a majority of those infected with the coronavirus are experiencing long COVID-19 symptoms.” https://t.co/Hrg7EMPp4v
— Laura Miers (@LauraMiers) May 14, 2022

Recent tweets on long covid

Biden administration launches national research plan to understand and treat long Covid https://t.co/ixx2i6jw6b
— CNBC (@CNBC) April 5, 2022

Yes I have long COVID and it pisses me off, when I’m tagged in these stories of complete devastation as if I am the one who is to bear the emotional load and responsibility— like YOU can’t be next. Long COVID is EVERYBODY’S PROBLEM. Start acting like it’s YOUR PROBLEM.
— Dr. Raven the Science Maven (@ravenscimaven) April 4, 2022

Just like COVID-19 generally, #LongCOVID may disproportionately impact communities of color. @CDCgov must collect & publish disaggregated demographic data on Long COVID so we can support our #longhaulers and target resources to those most impacted.
— Congresswoman Ayanna Pressley (@RepPressley) April 3, 2022

Been working on a manuscript with our Lancet Commission on vaccinating to prevent longCovid. I feel as though longCovid is still relegated to some dark corner of the public discourse. My opinion: we should do the opposite, provide an honest assessment of long Covid disabilities
— Prof Peter Hotez MD PhD (@PeterHotez) April 3, 2022

Folks really don't understand how common Long COVID is… or that a symptom of it is not knowing you have it.

There are so many questions.

So, I prepared this thoroughly sourced article to explain it with relevant studies.

41.8k views; updated regularlyhttps://t.co/Ev5td1C8Lw
— Don Ford – #LongCOVIDisDestroyingLives #ZeroCOVID (@DonEford) March 28, 2022

A weird thing about #LongCovid for me is that the memory loss & executive functioning issues feel permanent (haven't changed in 2 years) but the cognitive dysfunction/brain fog fluctuates day to day.

What would the mechanism of this be? My guess is the latter is vascular?

1/
— Hannah Davis (@ahandvanish) March 27, 2022

As life returns to normal, there’s one major COVID-19 risk we’re ignoring 📝 @Jamie_Ducharme https://t.co/tV0wPltfAD
— TIME (@TIME) March 27, 2022

Whenever I talk about having #LongCovid, I get a lot of ppl asking me whether I've been vaccinated. This is very frustrating. Many longhaulers – myself included – fell ill before the vaccine was widely available. In addition, 10-14% of breakthrough infections result in Long Covid
— Ravi Veriah Jacques (@RaviHVJ) March 23, 2022